It still hasn't been quite two weeks since we found out that Chance our newborn has a genetic disease called CF. Luckily, none of the other kid's have CF. We were scared McKenna had it but gratefully she does not.
Chance is a level 2 CF patient. Evidently there are 6 levels with one being the most severe and six being the most mild. We will post more as the information becomes available to us.
Monday, April 25, 2011
Saturday, April 23, 2011
Thursday, April 21, 2011
Wednesday, April 20, 2011
Today we took the rest of the kids into Primary Children's to test them for CF. They did sweat test that measures your salt content. Any top number between 40-59 is borderline and would need retesting. Cache tested 17/40 Carsen tested 15/40, but Mckenna tested 41/40. So there is a chance Mckenna has Cystic Fibrosis. We noticed that Mckenna doesn't drink a lot of liquid, so we're hoping that's the reason her salt content was so high. She has shown no other signs of Cystic Fibrosis in her 2.5 years of life. We will be doing a DNA test, Stool Sample Test, and another sweat test. We are waiting for the nurse to call us tomorrow to let us know when we can have those tests done. We are hopeful that those things are negative.
To find out more about CF click here.