Today we took the rest of the kids into Primary Children's to test them for CF. They did sweat test that measures your salt content. Any top number between 40-59 is borderline and would need retesting. Cache tested 17/40 Carsen tested 15/40, but Mckenna tested 41/40. So there is a chance Mckenna has Cystic Fibrosis. We noticed that Mckenna doesn't drink a lot of liquid, so we're hoping that's the reason her salt content was so high. She has shown no other signs of Cystic Fibrosis in her 2.5 years of life. We will be doing a DNA test, Stool Sample Test, and another sweat test. We are waiting for the nurse to call us tomorrow to let us know when we can have those tests done. We are hopeful that those things are negative.
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This is a picture of Chance and Mckenna, April 2011
Dearest Jill, my heart aches for you and your family. Know that you are in our thoughts and prayers. You are a strong women and I have always admired you! Hope to see you soon when we come to Utah and visit.
ReplyDeleteI linked to your blog off of my friends blog(she knows Cori). I have two nieces (almost 10 and 7 months) with CF. They are amazing girls! We have a video up on my video right now (for the great strides walk) if you want to look please do, nikaandtravis.blogspot.com also we have some cute CF charms too at princessendre.blogspot.com My sister would be willing to talk to you if you have questions. We will keep you in our prayers. Best of luck.
ReplyDeleteNika